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Since the summer of 2016 we are in full swing and plan to continue our efforts. We realize this is a lot of money but it means not only a hope for our son but a future for other families affected by Batten´s Disease.
We also hope for corporate donations and support from other foundations (although Swedish foundations often do not support non domestic research).
We are so grateful for all donations, large and small ones, and with your support we will reach our goal. Choose “Betala” Sign with your security code, and your donation will directly transfer to Fight Batten Disease Foundation.
But in the beginning of 2016, a few months before his seventh birthday, he was after a normal eye examination, diagnosed with Juvenile Batten Disease. The diagnosing neurologist explained that this neurodegenerative brain disease was rare and would leave him blind, immobile, cognitively impaired, and, ultimately lead to premature death.
He loves sports, everything from football, hockey, tennis to running and judo. He is through and through a wonderful happy kid who is curious about life.
Sartipy’s institution from the Swedish Heart-Lung Foundation (grant 20150528), Karolinska Institutet Foundation and Funds (grant 40842), and the Mats Kleberg Foundation (grants 2015-000-00015).
No funding agency had any role in the concept or design, data analysis or interpretation, or drafting, revision, or approval of manuscript. Dahlström has received research funding and/or honoraria from Astra Zeneca and Novartis. Fu has received research funding and/or honoraria from Astra Zeneca, Novartis, Trio MED, and Servier. Lund has received research funding and/or honoraria from Astra Zeneca, Novartis, Bayer, Vifor Pharma, Relypsa, Boston Scientific, and Heart Ware. Sartipy has reported that he has no relationships relevant to the contents of this paper to disclose.
It has become our mission and our responsibility to speak on behalf of these children who haven´t the ability to do it themselves. Our goal is to support a successful American research team to take gene therapy for Juvenile Batten disease to clinical trials.
This project is estimated to cost about million.
More recently, his work has extended to the effects of disease outside the brain including the spinal cord, peripheral and autonomic nervous systems, and other organs including the heart.
Together with colleagues from around the world his lab is also involved in the pre-clinical testing of a range of therapeutic strategies including enzyme replacement, gene therapy, neural stem cell transplantation and small molecule drugs, several of which have reached clinical trials.
In contrast, AF and SR populations were considerably different regarding associated patient characteristics and outcomes.Tags: Adult Dating, affair dating, sex dating